The Buffalo News5h
Affected − but not defined − by muscular dystrophy: ‘We’re all the same, even if we don’t look like it’
Suneel Ram is a spiritual seeker, sings in a band and was the subject of a comic novel two years ago about living with Duchenne muscular dystrophy, a rare genetic ...
Oxford Mail10h
Family of boys with life-limiting condition hope for Disneyland trip
The family of two boys who both have a life-limiting condition are hoping to take a trip to Disneyland Paris later this year.
Family hopes to take boys with life-limiting condition to Disneyland Paris
The family of two boys who both have a life-limiting condition are hoping to take a trip to Disneyland Paris later this year.
Scots children with muscular dystrophy denied free new life-extending drug
Patients in Scotland can't get the treatment - which is available in England - despite manufacturers giving it away for free ...
Trump administration terminates advisory committee guiding states on newborn screening for rare genetic diseases
A federal advisory committee that provides guidance on which rare diseases newborns should be screened for has been dissolved ...