A year on since we lost our amazing Patron Sir Terry Pratchett to Posterior Cortical Atrophy (PCA), filmmaker Simon Ball has teamed up with Alzheimer’s Research UK to launch a unique animation depicting the difficulties people living with the condition can face. PCA is a rare form of Alzheimer’s affecting the way the brain translates visual information from the eye. | Alzheimer's Research UK

🛑 What happens when a typical approach is used with someone living with Posterior Cortical Atrophy? In this moment, Charles describes what it feels like when his brain begins to shut down during a common care interaction: 💬 “My brain was like, I don’t want to do this. It’s scary when it stops.” In Part 3 of this Courageous Conversation, Teepa Snow shows how challenges can occur when someone is unaware of the skill required to truly support this unique situation. 🎁 Watch the full YouTube video

“Getting a diagnosis helped me in giving me a way forwards.” Steve is living with a rare form of dementia called posterior cortical atrophy, which usually begins by affecting a person’s vision. He reported his vision symptoms to his optometrist, but they found nothing wrong with his eyesight. It took four years from the start of his symptoms before he got his diagnosis – the diagnosis which made things tangible and helped remove anxiety about what was going on. Steve and his wife Aly want people